My Beautiful Ryan xoxoxoxo

Our beautiful Ryan was born in 2005. He was born with a condition called Blepharophimosis Syndrome. This condition affects the eye area making them look partially closed all the time. Our gorgeous boy is a tough little bugger though and has never let this condition affect him. He get's watery eye's regularly and has never complained, he just takes it all in his stride. He has now started school and gets asked by the other kids why his eyes are different and his reply is "I've got special eyes!".

Monday, September 27, 2010

Ready for Operation No. 2

Well op no 2 is fast approaching. We are due in Melb on tuesday 5th October. This next operation is called a "brow suspension". This is where they take skin & tendon from Ryan's upper thigh. The tendon is inserted into his upper lids and through to the top of his forhead (3 times each eye) and it pulls the top lid open. He will have three small cuts above each eye on the forhead where the tendon is held in place?!?!

Once this operation is completed he will not be able to fully close his eyes for a long time (approx 1 yr). Apparantly this does not bother children.

I am feeling a bit strange about this op. I don't know why exactly but I suppose I'm just worried. It's going to be really tough on him this time I think. But then again he coped fine last time so maybe he'll be ok. He will also look quite "different" after this op. Which is why we're doing it all I suppose but it just feels strange. I've gotten quite used to his "special eye's".

I will put another post on here next week after the operation and hopefully some photo's!

3 comments:

  1. I was hoping another blog would be made soon :) I will see you all next week for Op#2. He's a tough boy, and we'll all be there for each other. I'll have the pancakes and icecream ready!
    Love you all
    Rell xxx

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  2. Time is fast approaching for this op#2. Ryan says he is ready for this so I am sure he will get us all through it too. He is our amazing strong little man. As Rell said we will all be there for each other.
    Love you all
    Mum xxxxoxoxoxoxooxoxc

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  3. Thank you both.... We'll be fine! We're a tough bunch really - I just need to remind myself of that every now and then! haha Love you all. xoxo

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