My Beautiful Ryan xoxoxoxo

Our beautiful Ryan was born in 2005. He was born with a condition called Blepharophimosis Syndrome. This condition affects the eye area making them look partially closed all the time. Our gorgeous boy is a tough little bugger though and has never let this condition affect him. He get's watery eye's regularly and has never complained, he just takes it all in his stride. He has now started school and gets asked by the other kids why his eyes are different and his reply is "I've got special eyes!".

Monday, July 5, 2010

The first weeks after operation #1


Well I haven't had much time to blog lately with my beautiful three boys keeping me very busy.
This photo here is on the way home from melbourne - look at the difference already! We can see the white's of Ryan's eye's on the inside!

Ryan has done a fantastic job with his recovery. He hasn't complained at all and has taken it all in his stride. The first week we had to clean and apply ointment 3 times a day, the second week was 2 times a day and now we are just daily.

We had a check up in Melb on thursday last week (12 days post op) and Dr McNab was extremely happy with Ryan's progress. We were concerned that Ryan had opened up one of the corners during some rough play time with his big brother! BUT.. it's all ok, the stitches had come un done early but still looked fine.

The big part of the day though was that we have cancelled the second op that was due for NOW!! It had been scheduled for 11am Tuesday 6th (RIGHT THIS MINUTE!!). This was an error on the part of the assistants in the Dr's rooms though. He would like ryan to recover better from this op before doing the second which is skin grafts / tendon etc from his legs into his upper lids. The operation will now be in approx 3 - 6 months. We have an apptm scheduled as a check up in 6 weeks so we will make the booking then.

Overall it has been an ok experience. I had expected it to be an absolute nightmare but it hasn't been at all. Ryan has been great, Cody has been fantastic as has Andrew. Other than just being tired with all the travel, worry etc we've all been ok.

Ryan will go back to school next week and we'll just wait now until the next operation comes around. Hopefully it won't be so daunting now that we know just what a brave amazing boy we have!

Thanks everyone for your support and encouragement over the past few weeks. Narelle, it is great knowing we have your house to call our own while we are down there! Mum & Dad thank you for looking after the other boys and allowing me and andrew to concentrate on Ryan while in Hospital. It was nice to know the other two were being spoilt rotten and looked after and just be able to spend this time with Ryzie. Sherryn, your support does not go un-noticed - Thank you! And to all the friends, family and strangers who have offered support - we appreciate it all immensely. Thank you all. xoxo