My Beautiful Ryan xoxoxoxo

Our beautiful Ryan was born in 2005. He was born with a condition called Blepharophimosis Syndrome. This condition affects the eye area making them look partially closed all the time. Our gorgeous boy is a tough little bugger though and has never let this condition affect him. He get's watery eye's regularly and has never complained, he just takes it all in his stride. He has now started school and gets asked by the other kids why his eyes are different and his reply is "I've got special eyes!".

Thursday, October 7, 2010

Operation No 2 done!

Well we did it. Operation no 2 is done. I'm so proud of my Ryan. He did an amazing job again. It was a hard day again, they took the tendon from his leg and inserted it into his lids. No skin grafts yet - the dr is hoping that the tendon might be enough. We'll know more next week when we have the check up as to how successful it was etc. BUT>... it looks great. Not a huge difference but you can definately see an improvement. They have kind of created a "crease" in his upper lid and lifted it up a bit. I'll post photo's in the next day or so!
His leg has a cut in it about 4cm long and you can see the bruise going up his leg about 10 - 15cm. (that must be how much tendon came out?!?!) His leg is quite sore still, but his eye's are ok now.
We had a rough night the first night, he was up every couple of hours with pain in his forehead and leg, but I gave him panadol and a cold face washer to hold over his face and heaps of cuddles and we made it through! We headed home and he slept most of the way. He must've been quite sore and out of sorts though cause we took him to the pancake kitchen in Ballarat on the way home and he didn't eat anything!!!!!!!!
Anyway... Thursday (day3) was heaps better, we spent the day at home and then a couple of hours visiting his class at school. He was really good and didn't even need any pain killers on that day.
Today (day 4) has been a bit different, he's a bit grumpy and out of sorts again. But I think he's mainly just tired. we've been home again and he's only had one dose of panadol and seems to be ok. I think another good night's sleep tonight and he'll be 100%.

He didn't even get any shiner's this time! The only real bruising is to his leg which is amazing considering what he's been through. I can't speak highly enough of our amazing doctor. He's been so good and has done a wonderful job.

Anyway, we have a check up on Wed next week and will find out what the next steps are... but I think we might have a bit of a break now which will be good. It's been an exhausting and emotional time and I'm just glad to have a couple of op's down and out of the way.

I do have to say a HUGE thank you to Rell for the home away from home... Mum for being so wonderful with Jesse & Cody and ALL of my family for the support. I would not have been able to get through it without you ALL. I love you lots and lots.

xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxxooxoxoxoxoxoxoxxoxo